Friday, January 27, 2012

All Smiles

Today was a day of ALL smiles!!!! We got to have Mommy and Daddy time. I actually got to hold him for a couple of hours. It has been a little while since we had this type of bonding. All our wonderful nurses (Julie, Susannah, Anna, & Sarah) came in to join us with songs (Justin Bieber mostly...thanks Anna!!!) and dancing (Anna you Anna!!!). He gave all smiles to all of his nurses, but Mommy only got the "smirk," LOL. But you know what...I will take my smirk and roll with it. Jordan also got a chance to wear his beautiful hospital gown donated to us by the Sisters by Heart Foundation. Check him out....

Well, on another note, Jordan reached his feeding goal today of 29 cc and he will have an oil dietary supplement added tomorrow so that he can get off of his lipid meds. He also recieved the last of his anibiotics today at 4pm from his sternum procedure. So no meds going through IV's, everything he gets now is through his g-tube.

We also had a funny incident that occured today. I think the nurses could tell I'm a tad bit rusty when it came to calming my baby. Jordan was sleepy and irritated, daddy and I tried to get him swaddled and bundled but nothing was working. Honestly, I am still afaid to tend to him sometimes becuase he is a little more fragile than any other baby. Daddy had to step in and finish, then Julie made the final touches to keep him cozy. He fell asleep right after. Guess I better get over this fear REALLY soon because Jordan should be home sometime in March. Yay!!!!

I also want to take this moment to thank my partner, my friend, my EVERYTHING...Brian. Talk about a WONDERFUL father. He has been my rock that helps me get through this tough time and I honestly don't know what I would do without him. He's there whenever I want to talk or go spend extra time with Jordan whenever possible. He makes sure our Eldest son (Brian Jr.) is taken care of when unexpected things come up. He's just been there and I love him so much. So happy that I have these three wonderful men in my life.

Brian Sr. and Brian Jr. having story time

Jordan Man!!!

Daddy and Jordan

  Here is Daddy and Jordan's video...

Wednesday, January 25, 2012

This Kid is AWSOME!!!

Well, we are still resting up. We actually received news from Dr. Green with general surgery that they decided to go ahead with the procedure to fix his esophagus around the first week of February. So cross your fingers that the plan still stays into play.

Other than that Baby Jordan is just being his little feisty self. We actually got some belly time yesterday which he LOVES and enjoys a lot.
Good Morning

This is A LOT of hair...over an inch long!!!

Sooo Cute!!!

Knocked out :)
He actually slept on his belly for a while and woke up only to get his tush cleaned, lol. Also, you can tell he is starting to come into his own. He is starting to watch TV. We watch Transformers yesterday until we fell asleep. This morning, his nurse said that he was watching "Fresh Prince"  but was about to let him tune into the Sprout Network. We are still working on him holding up his head and he already tries to push up on his arms by his self. So small little steps of progress. I say he can take his time, he has already been through so much. He is such a great baby and a blessing to have. WE LOVE YOU JORDAN!!!

Monday, January 23, 2012


Today was a day for resting. Jordan has had a rough couple of days. He had to go back to the OR early Thursday morning due to his sternum wires detaching. He is back on the breathing machine but is expected to be extubated on tomorrow morning. He has been asleep and resting all weekend. As they say, sleep is the best medicine. Let's continue to pray for my little man. And to keep spirits high, I want to share with you a video that makes me smile every waking minute...

Friday, January 20, 2012

Jordan's River

Jordan Christopher Perry's was born on September 12, 2011 at 10:30am. He was 5lbs 7.5oz. and 18 inches long. His parents names are Brian Perry and Nastasia Dangerfield. And he has a big brother named Brian Perry, Jr. 
As beautiful as he is, he is very stubborn and does not like to be touch by anyone except for Mommy and Daddy. He is a very strong baby and very observant of everything that goes on around him.

But the very beginning of Jordan's river actually began on May 9, 2011. This was the day that I not only found out the sex of my precious baby boy, but how there were issues with his heart. So you can say it was the best/worst day. A couple of days later we went to a high risk specialist. They confirmed the baby had a congenital heart defect. Talk about the world stopping. Everything after those words were blanked out and I could not do anything but cry.  I was told everything from possible miscarriages, mental defects, and even options of abortions, but I never let any of it cross my mind ONCE. It kind of dawned on me that I needed to make sure that I did everything I could to help our precious baby so that he could survive. No matter how much in debt we get or how hard it would be we would do EVERYTHING we could to give our son a life he deserved. Since that eye opening day he has showed us how much he is willing to fight to be here.

After all the heartbreak and emotions you go through trying gain as much info as you can and trying and make sense of everything so that you can do what is BEST for the both of you, there is where more complications came for us...I started to have anxiety attacks, loosing sleep...basically stressed. A month after finding out about the baby's condition, I started to feel weak and really tired. I went to the doctor and she diagnosed me with gestational diabetes. I also started to have chest issues and was diagnosed with a heart murmur (this was not a big deal due to it being common that women have murmurs while pregnant). Because of the diabetes and high fluid levels, Jordan decided he wanted to make an early entrance at 31 weeks. I was then placed on hospital bed rest.
I was on hospitalized bed rest for one month and sent home for 2 1/2 weeks. Despite all odds of doctors saying I wasn't going to be able to hold him full term...I SURE DID DO IT, LOL!!!
Daddy making fun of my huge belly

September 12, 2011 C-section Day!!!

At 37 weeks and 1 day on September 12th 2011 I gave birth by c-section to Jordan and it was one of the happiest days of our life.

Jordan was born with a heart condition called Hypo-plastic Left Heart Syndrome where the left side of his heart is under developed. He also has another heart condition called Total Veins, where veins that were suppose to be attached to vessels of the heart were attached to a different area of the body. In Jordan's case, his veins were attached to his liver. Lastly, he has another condition called Esophageal Astresia. This is where the part of the esophagus that leads to the stomach is not attached to where food can be digested.

Because of this condition, Jordan has a G-Tube to receive his feedings.
Jordan needs your support through prayer. Miracles happen everyday...Let's pray he's next in line.
Jordan's scheduled heart surgery for the Total Veins procedure is September 19th. His follow-up surgery called the Norwood Procedure is scheduled for January 3, 2012. He has to have two other heart procedures that will follow called the Glenn (Scheduled for Mid Summer) and the Fontan (Scheduled for age 2 or 3). His Esophageal Atresia procedure is scheduled for February 16, 2012.

 2 Corinthians 4:16 Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day.
Let's pray that the hands who leads these operation will heal our baby's heart.