Friday, January 20, 2012

Jordan's River

Jordan Christopher Perry's was born on September 12, 2011 at 10:30am. He was 5lbs 7.5oz. and 18 inches long. His parents names are Brian Perry and Nastasia Dangerfield. And he has a big brother named Brian Perry, Jr. 
As beautiful as he is, he is very stubborn and does not like to be touch by anyone except for Mommy and Daddy. He is a very strong baby and very observant of everything that goes on around him.

But the very beginning of Jordan's river actually began on May 9, 2011. This was the day that I not only found out the sex of my precious baby boy, but how there were issues with his heart. So you can say it was the best/worst day. A couple of days later we went to a high risk specialist. They confirmed the baby had a congenital heart defect. Talk about the world stopping. Everything after those words were blanked out and I could not do anything but cry.  I was told everything from possible miscarriages, mental defects, and even options of abortions, but I never let any of it cross my mind ONCE. It kind of dawned on me that I needed to make sure that I did everything I could to help our precious baby so that he could survive. No matter how much in debt we get or how hard it would be we would do EVERYTHING we could to give our son a life he deserved. Since that eye opening day he has showed us how much he is willing to fight to be here.

After all the heartbreak and emotions you go through trying gain as much info as you can and trying and make sense of everything so that you can do what is BEST for the both of you, there is where more complications came for us...I started to have anxiety attacks, loosing sleep...basically stressed. A month after finding out about the baby's condition, I started to feel weak and really tired. I went to the doctor and she diagnosed me with gestational diabetes. I also started to have chest issues and was diagnosed with a heart murmur (this was not a big deal due to it being common that women have murmurs while pregnant). Because of the diabetes and high fluid levels, Jordan decided he wanted to make an early entrance at 31 weeks. I was then placed on hospital bed rest.
I was on hospitalized bed rest for one month and sent home for 2 1/2 weeks. Despite all odds of doctors saying I wasn't going to be able to hold him full term...I SURE DID DO IT, LOL!!!
Daddy making fun of my huge belly

September 12, 2011 C-section Day!!!

At 37 weeks and 1 day on September 12th 2011 I gave birth by c-section to Jordan and it was one of the happiest days of our life.

Jordan was born with a heart condition called Hypo-plastic Left Heart Syndrome where the left side of his heart is under developed. He also has another heart condition called Total Veins, where veins that were suppose to be attached to vessels of the heart were attached to a different area of the body. In Jordan's case, his veins were attached to his liver. Lastly, he has another condition called Esophageal Astresia. This is where the part of the esophagus that leads to the stomach is not attached to where food can be digested.

Because of this condition, Jordan has a G-Tube to receive his feedings.
Jordan needs your support through prayer. Miracles happen everyday...Let's pray he's next in line.
Jordan's scheduled heart surgery for the Total Veins procedure is September 19th. His follow-up surgery called the Norwood Procedure is scheduled for January 3, 2012. He has to have two other heart procedures that will follow called the Glenn (Scheduled for Mid Summer) and the Fontan (Scheduled for age 2 or 3). His Esophageal Atresia procedure is scheduled for February 16, 2012.

 2 Corinthians 4:16 Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day.
Let's pray that the hands who leads these operation will heal our baby's heart.

1 comment:

  1. I love your blog. My heart goes out to you and Alex. I will continue to pray for you and baby Jordan. This is wonderful I love it.